Hopefully, next month will bring us more answers as to what is going on with her little gi tract. We are confident in saying she does have a form of FPIES (Food Protein Induced Enterocolitis Syndrome). Her Feeding Team supports this, her allergist said she was on the "spectrum" and we have consulted a specialist in Columbus, Ohio who was certain she had a variant. Plus, the wonderful moms and dads in my FPIES support group have shared some much information. It has been eye opening.
I know everyone these days has a cause they want you to support. But today is for the "rare" ones. So wear some comfy jeans. You can still look professional. I know because her daddy came down sporting a pair. Guess he will be a bit more casual rounding today.
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