Tuesday, March 4, 2014

Rumble From Evey's Belly

The Great Rumble... It's a very common sign of what is to come. Belly rumbles = sleep disturbances, fussy baby, and yucky poop. Yes, I examine my child's bowel movements like an oracle reading tea leaves. They are very telling.

So cauliflower. Two spoonfuls = red cheeks. One teaspoon = skipping naps and screaming until passing out. We pushed her to two teaspoonfuls. We gave her a rest day. Magically, that baby napped and wasn't as fussy.

This reaction was unlike many in the past. None the less she was uncomfortable. Really who wants that.  Feeding therapy agreed to not push it or anything new until we see our new GI doctor. Yep, another doctor. Another person to tell her long history to. Another person that will most likely say, "Huh, that's interesting." I have been assured he is good. He treats FPIES and other weird variations.
As much as we haven't made much progress in feeding therapy I will say one thing, THEY BELIEVE ME! They have seen other children, other mothers, other parents struggle with the SAME ISSUES. It is real. I am not crazy. Hopefully in a months time I will have a doctor that will recognize the issue.

There isn't anything he can do. There isn't a magic pill or procedure that will make her tolerate food. For me it is for someone to recognize there is a PROBLEM instead of saying "Hang in there. It will get better." Obliviously it hasn't. Honestly, it has worsened. I don't understand how some of these doctors sleep knowing a family is struggling so hard to feed their child. At the very least REFER the poor saps to some one that might be better suited.

And so another food trial.... well we are not calling it a fail.

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